Skip to main content

Advocacy

Advocacy & Legislation

Advocacy is at the heart of the Autism Society of Indiana’s mission. We work to ensure individuals with Autism and their families have a voice in local, state, and federal policy decisions that impact services, supports, and quality of life.

Press Releases

Understanding Indiana’s New InterRAI Assessment: What Waiver Families Need to Know

August 12, 2026

Indiana has begun using the InterRAI assessment as part of the process to determine eligibility and support needs for certain Medicaid waiver programs.

Since implementation began, 857 individuals have received waiver denials, and approximately 1,700 additional individuals remain under review. Families receiving a denial have important rights and options.

What families should know:

A denial is not the end of the process.
If an individual is denied waiver eligibility, they will receive a written denial notice explaining their rights to appeal.

You have 33 days to appeal.
Individuals have 33 days from the date of the denial notice is received to request an appeal. During the appeal process, the individual keeps their waiver services.

The InterRAI assessment is not an artificial intelligence (AI) tool.
FSSA has clarified that InterRAI is an assessment tool—not an AI system. Each waiver denial and appeal decision is reviewed and made by a person.

Indiana customized the InterRAI tool.
FSSA has shared that Indiana’s customized version is not intended to change assessment outcomes. The information collected will also be used in the future to help determine budgets and services.

How families can prepare for an InterRAI assessment:

Ask clarifying questions about each question being asked. If you are unsure what a question means, ask the case manager to explain.

Listen carefully to all answer choices before responding. The wording of responses matters.

Pay attention to who is answering the question. Some questions are intended to be answered by the individual. If the individual cannot answer, there may be a specific response option available.

If a parent or guardian answers on behalf of an individual, understand that some responses may assume a higher level of ability or independence. Make sure the answer reflects the individual’s actual support needs.

The Autism Society of Indiana recognizes that changes to waiver assessments can create uncertainty for individuals and families. Accurate assessments are critical to ensuring Hoosiers with disabilities keep receiving the supports they need to live safely and successfully in their communities.

ASI will continue to share updates, resources, and information as this process continues.

Autism Society of Indiana: Medicaid’s Financial Recovery Must Result in Better Access for Hoosier Families

August 11, 2026

The Autism Society of Indiana welcomes reports that Indiana’s Medicaid program has returned to a stronger financial position after months of concern over its fiscal outlook. Responsible stewardship of taxpayer dollars is important, and a stable Medicaid program benefits all Hoosiers.

However, recent reports of a healthier Medicaid budget stand in stark contrast to the experiences of many Indiana families raising children with autism or supporting adults with developmental disabilities.

Across the state, families continue to report losing Medicaid coverage during eligibility renewals, facing delays in medically necessary services, struggling with provider shortages, and encountering increasing barriers to obtaining or maintaining Home and Community-Based Services (HCBS) waivers. For many, these are not administrative inconveniences, they are life-changing disruptions that can mean missed therapies, lost employment, increased caregiver stress, and a greater risk of crisis.

A balanced budget cannot be the only measure of success.

The true measure of Indiana’s Medicaid program is whether eligible Hoosiers can access the services they need to live safely, independently, and with dignity in their communities.

Home and community-based services are not simply expenditures. They are proven investments that help prevent more costly emergency care, hospitalizations, and institutional placements while supporting employment, education, and family stability.

If Indiana’s Medicaid program is now on stronger financial footing, this is the moment to reinvest in the systems that support people with disabilities. That includes strengthening the direct support workforce, reducing unnecessary administrative barriers, improving access to autism evaluations and medically necessary services, and ensuring waiver programs remain responsive to the needs of eligible Hoosiers.

“The Autism Society of Indiana believes fiscal responsibility and access to quality care should go hand in hand,” said Rachel Deaton, Director of Training and Legislation for the Autism Society of Indiana. “Families should not have to celebrate a balanced budget while simultaneously wondering whether their child will lose therapy, whether a caregiver can continue working, or whether a loved one will receive the supports they need to remain at home. Financial stability should translate into greater stability for Indiana families.”

The Autism Society of Indiana urges state leaders to use this opportunity to strengthen—not scale back—the services that allow people with autism and other developmental disabilities to thrive in their homes, schools, workplaces, and communities.

The organization also encourages Hoosiers to stay informed and engage with their elected officials. Constituents can identify their Indiana State Representative and State Senator using the Indiana General Assembly’s “Find Your Legislator”tool and are encouraged to share their experiences with Medicaid and disability services throughout the year. Personal stories help policymakers better understand how decisions made at the Statehouse affect individuals and families across Indiana.

The Autism Society of Indiana remains committed to working with policymakers, providers, self-advocates, and families to build a Medicaid system that is both fiscally sustainable and responsive to the needs of Indiana’s disability community.

About the Autism Society of Indiana

The Autism Society of Indiana exists to create connections, empowering everyone in the Autism community with the resources needed to live fully. Through advocacy, education, support, and community engagement, the organization works to ensure every autistic Hoosier has access to the opportunities and services they need to thrive.

Community Living Is a Civil Right: Indiana Must Remain Vigilant- A joint statement from the Indiana Disability Alliance

June 23, 2026

The disability rights movement has always been rooted in a simple belief: people with disabilities belong in their communities.

For decades, people with disabilities were unnecessarily separated from family, friends, schools, workplaces, and neighborhoods because institutional settings were often viewed as the default option for support. Families and advocates worked tirelessly to change that reality, fighting for the right to live, learn, work, and thrive in the communities they call home.

One of the most significant victories in that fight came in 1999 with the U.S. Supreme Court’s landmark decision in Olmstead v. L.C. The Court recognized that unnecessarily institutionalizing people with disabilities constitutes discrimination under the Americans with Disabilities Act (ADA). The decision affirmed that people with disabilities have the right to receive services in the most integrated setting appropriate to their needs.

Today, that progress faces a new challenge.

The U.S. Department of Justice recently issued a legal opinion that seeks to narrow the interpretation of Olmstead and signals a potential retreat from federal enforcement of community integration protections. While this opinion does not overturn Olmstead, repeal the ADA, or eliminate Section 504 of the Rehabilitation Act, it raises serious concerns about the federal government’s commitment to protecting one of the most important civil rights of people with disabilities.

For members of the Indiana Disability Alliance and the thousands of Hoosiers we represent, this is not simply a legal debate. It is a question of whether people with disabilities will continue to have meaningful choices about where and how they live.

It is about whether a child with a disability can grow up at home with their family and participate fully in school and community life. It is about whether adults with disabilities can live independently, pursue careers, build relationships, and contribute to their communities with the supports they need. And it is about ensuring that people are not forced into institutional settings simply because the services that make community living possible are unavailable or underfunded.

 

Community living is not a privilege. It is a civil right.

The Indiana Disability Alliance was founded on the principle that people with disabilities should have every opportunity to participate fully in community life. Our coalition brings together organizations that understand that inclusion strengthens all of our communities.

We have seen firsthand the transformative impact of community-based services and supports across Indiana. We have watched individuals move from waiting lists to meaningful employment. We have seen families remain together because supports were available at home. We have witnessed people build independent lives, develop friendships, and become active participants in civic life when given the opportunity and resources to do so.

These successes are not accidental. They are the result of decades of advocacy, public policy reforms, and legal protections such as Olmstead.

History reminds us why these protections matter. The Olmstead decision originated from the experiences of Lois Curtis and Elaine Wilson, two women who remained confined in a Georgia state hospital even after professionals determined they could live successfully in the community. Their courage helped establish a legal framework that has benefited millions of Americans with disabilities.

Yet civil rights are not always dismantled through sweeping legislative changes. Often, they are weakened through reduced enforcement, shifting interpretations, withdrawn guidance, and policy decisions that gradually limit access to protections. That is why this DOJ opinion deserves our attention.

The good news is that Olmstead remains the law of the land. The ADA remains in force. Section 504 remains in force. The legal protections supporting community integration have not disappeared.

But rights are only meaningful when they are defended.

As Hoosiers, we have a responsibility to remain informed, engaged, and united in protecting the progress we have achieved. Policymakers, community leaders, service providers, advocates, and families must continue working together to strengthen home- and community-based services and ensure that individuals with disabilities have real choices about their lives.

The Indiana Disability Alliance will continue to advocate for policies that promote inclusion, independence, and self-determination. We will continue to work alongside our partners at the local, state, and national levels to protect the rights guaranteed by the ADA, Section 504, and Olmstead. And we will continue to elevate the voices of people with disabilities whose lived experiences remind us why these protections matter.

The fight for community living did not begin with one court case, and it will not end with one legal opinion. It is an ongoing commitment to the belief that every person deserves the opportunity to belong, contribute, and thrive in their community.

People with disabilities are asking for what every person deserves: equal opportunity, equal dignity, and equal access to the communities they call home.

Those are values worth defending—for Indiana and for our nation.

Signed by:  

Courtney Wolley, Executive Director  

Autism Society of Indiana  

Macy Pohl

Down Syndrome Indiana  

Sara Cummins, Executive Director 

FUSE  

John Guingrich, Chairperson

Independence Indiana  

An association of Indiana Centers for Independent Living

Holly Wheeler, Executive Director 

Indiana Family to Family (INF2F)

Mike Foddrill, Executive Director

Indiana Statewide Independent Living Council (INSILC) 

Erin McGuire, President

Self-Advocates of Indiana (SAI)

Kim Dodson, CEO 

The Arc of Indiana

Stronger Together: Autism Society of Indiana Joins the Indiana Disability Alliance

May 8, 2026

Indianapolis, IN — The Indiana Disability Alliance, a newly formed coalition representing Indiana’s leading disability organizations, welcomes Indiana’s withdrawal from Texas v. Kennedy, calling the decision an important step in upholding protections that support people with disabilities in living, learning, working, and fully participating in everyday life.

The Alliance expressed appreciation for Attorney General Todd Rokita’s decision to remove Indiana from the multi-state lawsuit, which challenges key provisions of Section 504 of the Rehabilitation Act.

“People with disabilities should have the opportunity to live and fully participate in their communities,” the Alliance said in a joint statement. “This action supports that fundamental right and reinforces the importance of continuing to strengthen Medicaid and state-funded home and community-based services (HCBS) that enable individuals with disabilities to live in their own homes or communities rather than institutional settings.”

The formation of the Alliance comes at a critical time, as disability advocates nationwide are closely monitoring ongoing discussions around Medicaid funding and policy changes that could impact access to HCBS. Any reductions or barriers to these supports will have serious consequences, potentially forcing individuals into more restrictive and costly institutional settings.

Indiana’s disability advocacy organizations have joined together to represent a unified message around the importance of HCBS for people with disabilities of all ages in our state. The Alliance is committed to ensuring that policymakers understand the importance of protecting and strengthening these vital services. Together, the Alliance will amplify a unified voice, empowering individuals with disabilities and their families to advocate alongside member organizations for policies that support independence, inclusion, and opportunity in communities across the state.

About the Indiana Disability Alliance

Mission: The Indiana Disability Alliance is a statewide coalition representing people with all disabilities, bringing together organizations to advance public policies that promote independence, community integration, and meaningful opportunity across Indiana. Through coordinated advocacy, the Alliance works to strengthen home and community-based services and other systems that support individuals in living, learning, working, and participating fully in community life, while preventing unnecessary institutionalization and supporting sustained community living. 

Indiana Disability Alliance:   

Find Your Legislator

Knowing who represents you is the first step to effective advocacy.

Use these tools to identify your state senator, state representative, and members of Congress.

Day at the Statehouse

Join the Autism Society of Indiana and partner organizations for our annual Day at the Statehouse, where advocates from across Indiana come together to share their stories and priorities with legislators.

No advocacy experience needed — training and support are provided. Check back for information for next year!

Indiana State Issues

Stay informed about legislation and policy decisions affecting autism services and supports in Indiana.

United States Federal Issues

Federal policy plays a critical role in funding, civil rights, healthcare, and education.

Get Involved & Take Action

Want to stay engaged and receive timely advocacy alerts?

Our Advocacy Commitment

The Autism Society of Indiana is committed to advancing policies that promote inclusion, access to services, and dignity for individuals on the autism spectrum across the lifespan.